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Juvenile (type 2) genetic haemochromatosis

7 Oct 2026

This guide for parents and carers explains the rare type 2 variant of genetic haemochromatosis, which typically affects young people under 25 years old.

Increasing numbers of young people are being diagnosed with juvenile haemochromatosis. This is a simple guide to help parents and people caring for someone who has been diagnosed with this less common type of genetic haemochromatosis.


We gratefully acknowledge the support of the Douglas Heath Eves Charitable Trust, Lillie Johnson Charitable Trust & The Grace Trust in developing this guide.


This guide is included upon request in our membership pack - join now!

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