We have put together a comprehensive list of all those organisation, charities and associations situated around the world who can offer this important help and support.
If you run or represent a patient group or charity supporting people with genetic haemochromatosis and would like your details featured here, just contact our office.
Australia
Haemochromatosis Australia
website: www.ha.org.au
email: admin@ha.org.au
tel: 1300 019 028
Facebook: https://www.facebook.com/Haemochromatosis
Belgium
Haemochromatose Vereniging Vlaanderen vzw
website: www.haemochromatose.be
email: info.hvv@gmail.com
Twitter: https://twitter.com/Haemochromatose
tel: 016 34 46 49
Brazil
Grupo Brasileiro de Hemocromatose Hereditária - The Brazilian Group of Hereditary Haemochromatosis (GBHH)
website – www.hemocromatosehereditaria.com.br
e-mail: contato@hemocromatosehereditaria.com.br
Facebook – www.facebook.com/hemocromatosehereditaria
contact: Paulo Santos
tel: (0 55 11) 5576 4848
Denmark
Danish Hemochromatosis Association
website: www.haemokromatose.dk
email: gertmadsen@live.dk or tanyaej@live.dk
tel : +45 20204942 or +45 61716096
Europe
European Federation of Associations of Patients with Haemochromatosis
website: http://efaph.eu/
email: info@efaph.eu
contact: Francoise Courtois, General Secretary
tell: 00 33 (0)6 08 25 94 04
France
Association Hemochromatose France
website: www.hemochromatose.fr
email : hemochromatose@orange.fr
Facebook: www.facebook.com/hemochromatose.fr
tel: 04 66 64 52 22 ou 09 75 49 14 52
Germany
Hämochromatose-Vereinigung Deutschland e.V.
website: www.haemochromatose.org
email: info@haemochromatose.org
contact: Barbara Butzeckl
tel: (0049) 2324- 8672048
Holland
Hemochromatose Vereniging Nederland
website: www.hemochromatose.nl
email: info@hemochromatose.nl.
Hungary
Hemokromatózisos Betegek Egyesülete (Hemochromatosis Patient Association)
website: www.hemokromatozis.hu
email: info@hemokromatozis.hu
Facebook (and messenger): https://www.facebook.com/hemokromatozis
Iceland
Járnofhleðsla - Hemochromatosis
www.facebook.com/Járnofhleðsla-Hemochromatosis-Iceland
Ireland
Irish Haemochromatosis Association
website: www.haemochromatosis-ir.com
email: info@haemochromatosis-ir.com
tel: +353 (1) 8735911
Italy
Associazione Emocromatosi
website: www.emocromatosi.it
email:info@emocromatosi.it
Facebook: www.facebook.com/emocromatosi
New Zealand
Leukaemia and Blood Cancers
website: https://www.leukaemia.org.nz
Facebook: https://www.facebook.com/HaemochromatosisNZ
Norway
Norsk Hemokromatoseforbund
website: www.hemokromatose.no
email: info@hemokromatose.no
contact: Ketil Toska
tel: +47 93 40 53 22
Portugal
Associação Portuguesa de Hemocromatose.
website: www.aphemocromatose.org
Spain
Asociación Española de Hemocromatosis (AEH)
website: www.hemocromatosis.es/
Facebook: www.facebook.com/Asociación-Española-de-Hemocromatosis-390071277706656/
email: aeh@fhes.cat
South Africa
Haemochromatosis South Africa
website: www.haemochromatosis-international.org/
email: info@haemochromatosis-international.org
Facebook: https://www.facebook.com/HaemochromatosisSA
USA
Iron Disorders Institute
website : www.irondisorders.org
contact : Cheryl Garrison
email :cgarrison@irondisorders.org
contact : Cheryl Garrison
tel: 864-915-5285
Other American Sites
American Hemochromatosis Society (AHS): www.americanhs.org