At Haemochromatosis UK we provide advice and support to people with genetic haemochromatosis across the UK. We educate, inform and support people through our website and publications, social media, training for professionals and our public awareness campaigns.

We’re seeking enthusiastic and skilled volunteers with an interest in haemochromatosis to help provide the Haemochromatosis UK helpline by telephone or email.

As a volunteer Helpliner you will help to deliver the Haemochromatosis UK helpline service. The purpose of this role is to maximise our impact and enable us to offer telephone and email support services to as many people as possible across the UK.

All helpline volunteers undergo a 4 week correspondence course, delivered via email. At the conclusion of the course, you will also be asked to undertake our online safeguarding training and assessment (this takes 1-2 hours to complete and can be done at a time to suit you).

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What are the benefits of being a Volunteer Helpliner?

  • Be part of a team of volunteers and meet new people
  • Enjoy the satisfaction that comes from helping others 
  • Increase your confidence, communication and interpersonal skills
  • Develop new skills, useful in other areas of your life

What is the time commitment?

  • For the telephone helpline, we ask for your help for 3 hours (between Noon and 3pm, weekdays) once or twice per month on an ongoing basis.
  • For the email helpline, we ask for your help for 3 hours once or twice per month (flexible hours to suit you) on an ongoing basis.

What's involved?

  • Help Haemochromatosis UK to deliver our helpline service by phone and/or email.
  • Respond appropriately to questions, concerns and any distress of callers, using your training and within the remit of a helpliner as outlined in the helpline procedures and standards.
  • Explore what practical or emotional issues callers need to talk through and to provide good quality information at the right level.
  • Signpost callers (without giving medical advice) so that they can consider and choose for themselves what they want to do or happen next.
  • Adopt and adhere to the helpline procedures and standards.
  • Maintain strict confidentiality.
  • Honour the time commitments you make and to give reasonable notice if this is not possible.

What's NOT involved?

We do not expect our helpliners to :

  • Give medical advice, unless medically qualified to do so
  • Answer personal messages or in depth questions from members of the group by email.
  • Share your personal experience or any personal details.

What skills are useful in this role?

  • To be able to communicate effectively, show empathy and patience.
  • Have a good understanding of confidentiality
  • The ability to work equally well in a team and unsupervised.
  • An interest in, knowledge of or willingness to learn about haemochromatosis.
  • Be confident meeting and speaking to new people.

What equipment is needed?

  • A computer or smartphone with access to the internet.
  • A voiphone handset (which plugs into your broadband router) or a mobile phone helpline app will be provided.

What support will you be given?

  • Volunteer induction and training
  • On-going support by an allocated person from Haemochromatosis UK
  • Periodic volunteer meetings (quarterly).
  • A Voiphone (or app to take calls with)
  • Opportunities to become involved in other Haemochromatosis UK activities.