GH for Clincians

Our charity runs an education programme to train and equip clinicians to accurately diagnose genetic haemochromatosis in the community.

In 15 minutes, this video provides :

an overview of genetic haemochromatosis
prevalence of genetic haemochromatosis in the UK, by region
the risks of undiagnosed iron overload
early symptoms of iron overload
variations in iron loading by genetic subtype
how to identify or diagnose genetic haemochromatosis
treatment and ongoing care pathways

Additional Resources for Primary Care

We have developed a CPD accredited eLearning module, in partnership with the Royal College of GPs.
We have produce a free downloadable booklet for GPs, accredited by our Dr Susan Hancock (FRCGP), a member of our Clinical Advisory Panel
Our Clinical Advisory Panel published their consensus statement on genetic haemochromatosis in December 2019

Latest

British Society of Haematology Annual Scientific Meeting 2022

We're exhibiting at this annual event to raise awareness of genetic haemochromatosis amongst haematology professionals.
Evaluating the Cost of Illness of Genetic Haemochromatosis in the UK

Our latest report reveals the true costs to the NHS of the burden of ill-health arising from genetic haemochromatosis.
EASL International Liver Congress 2022

We will be exhibiting at EASL International Liver Congress, Europe's leading platform for hepatology best practice and science.
Ailsa is doing Dry January?!

Haemochromatosis is a disease that runs in my family. It took away my wonderful Papa many years too soon. I’d like to raise more money for the charity that we all donated to after his passing.

CV19 Vaccine & Haemochromatosis

Advice and information on the new Covid-19 vaccines for people affected by genetic haemochromatosis. Updated 14th June 2021.
What is genetic haemochromatosis?

Genetic haemochromatosis (GH) is a genetic disorder causing the body to absorb an excessive amount of iron from the diet.
Genetic Testing for Haemochromatosis

Our genetic testing service for haemochromatosis, at a glance. Order a home-testing kit by post, get the results within 2 weeks.
Employers' guide to haemochromatosis

People with genetic haemochromatosis want to play an active role in society. These guidelines are intended to help employers understand how they can help people with genetic haemochromatosis in the workplace.
Treatment & care
Coronavirus Update

Our helpline has received an increased number of queries about coronavirus. We've collated the current advice here. Updated 28th July 2021.
Clinical Guidelines for Genetic Haemochromatosis

Our charity endorses the national clinical guidelines published by the British Society for Haematology in April 2018, for the treatment of people with genetic haemochromatosis. We strongly encourage patients to ensure that their consultants and venesection teams work to the BSH April 2018 guidelines.
Genetics of haemochromatosis

Genetic haemochromatosis is an autosomal recessive condition, meaning that it is inherited. Whether someone inherits the condition, depends upon their parents' genetics.
Join us

Together, we are stronger. Join today as a member and receive the many benefits of membership of the UK's only charity for people affected by genetic haemochromatosis.
Advice lines

Our advice lines are available by phone and email. Worried about genetic haemochromatosis? Don't be. Talk to us for friendly, practical help & understanding.