GH for Clincians

Our charity runs an education programme to train and equip clinicians to accurately diagnose genetic haemochromatosis in the community.

In 15 minutes, this video provides :

an overview of genetic haemochromatosis
prevalence of genetic haemochromatosis in the UK, by region
the risks of undiagnosed iron overload
early symptoms of iron overload
variations in iron loading by genetic subtype
how to identify or diagnose genetic haemochromatosis
treatment and ongoing care pathways

Additional Resources for Primary Care

We have developed a CPD accredited eLearning module, in partnership with the Royal College of GPs.
We have produce a free downloadable booklet for GPs, accredited by our Dr Susan Hancock (FRCGP), a member of our Clinical Advisory Panel
Our Clinical Advisory Panel published their consensus statement on genetic haemochromatosis in December 2019

Latest

Going to Hell & Beyond for Haemochromatosis UK

In July 2020, Mike Fletcher (61) is riding his motorbike “To Hell and Beyond” to raise awareness and money for Haemochromatosis UK.
Big Give Christmas Challenge

This year, we're taking part in the Big Give Christmas Challenge, the UK’s biggest online match funding campaign. We’re hoping to raise vital funds for our 2021 awareness-raising campaign.
Virgin London Marathon - 2020

We have places at the Virgin London Marathon 2020. We’re delighted that Mark Handley will be running the Virgin Money London Marathon, in aid of Haemochromatosis UK. Support our runners here!
Awareness Raising at Balmoral Show

We're raising awareness of GH in the farming community in Northern Ireland.

Coronavirus Update

Our helpline has received an increased number of queries about coronavirus. We've collated the current advice here.
Ask the doctor

On Thursday 26th March 2020, we put our members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel.
Ask the doctor (part 2)

On Thursday 2nd April 2020, we put further members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel.
Frequently Asked Questions About Genetic Haemochromatosis

We have collated many of the frequently asked questions about genetic haemochromatosis here, for ease of reference.
2020 Conference Postponement and AGM Update

Haemochromatosis UK have taken the very difficult decision to postpone this year’s conference which was to be held in Manchester on Saturday the 4th of April due to the Covid-19 outbreak.
Accessibility
Clinical Guidelines for Genetic Haemochromatosis

Our charity endorses the national clinical guidelines published by the British Society for Haematology in April 2018, for the treatment of people with genetic haemochromatosis. We strongly encourage patients to ensure that their consultants and venesection teams work to the BSH April 2018 guidelines.
What is genetic haemochromatosis?

Genetic haemochromatosis (GH) is a genetic disorder causing the body to absorb an excessive amount of iron from the diet.
New Genetic Haemochromatosis Resources

We're pleased to announce the publication of three new resources, to help people affected by genetic haemochromatosis.
Venesections cancelled or delayed?

Our charity has negotiated special arrangements for people with genetic haemochromatosis to donate blood during the Covid-19 outbreak.