GH for Clincians

Our charity runs an education programme to train and equip clinicians to accurately diagnose genetic haemochromatosis in the community.

In 15 minutes, this video provides :

an overview of genetic haemochromatosis
prevalence of genetic haemochromatosis in the UK, by region
the risks of undiagnosed iron overload
early symptoms of iron overload
variations in iron loading by genetic subtype
how to identify or diagnose genetic haemochromatosis
treatment and ongoing care pathways

Contact us for further details or to book a free primary care training session.

Additional Resources for Primary Care

We have developed a CPD accredited eLearning module, in partnership with the Royal College of GPs.
We have produce a free downloadable booklet for GPs, accredited by our Dr Susan Hancock (FRCGP), a member of our Clinical Advisory Panel
Our Clinical Advisory Panel published their consensus statement on genetic haemochromatosis in December 2019

Latest

HUK Calls for Screening of Haemochromatosis in Adults

Our charity has responded to the UK National Screening Committee consultation on screening for haemochromatosis in adults.
APPG on GH : Blood donor services (February 2021)

The Spring All-Party Parliamentary Group on Genetic Haemochromatosis will be held online via Zoom webinar on Wednesday 17th February at 2.30pm.
Understanding your blood test results

Blood test results can be baffling - our guide helps to explain what each test is about.
Cardiomyopathy & Genetic Haemochromatosis

Cardiomyopathy is a heart condition where the walls of the heart muscle are thicker than usual. Poeple with GH can develop cardiomyopathy.

Most read

Coronavirus Update

Our helpline has received an increased number of queries about coronavirus. We've collated the current advice here. Updated 18th January 2021.
Ask the doctor

On Thursday 26th March 2020, we put our members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel.
Ask the doctor (part 2)

On Thursday 2nd April 2020, we put further members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel.
CV19 Vaccine & Haemochromatosis

Advice and information on the new Covid-19 vaccines for people affected by genetic haemochromatosis. Updated 6th January 2021.
Liver cancer ten times more likely in men with GH

Men who have the Western world’s most common genetic disorder, haemochromatosis, are ten times more likely to develop liver cancer, according to a major new study.
UK National Screening Committee Consultation

This month, UK National Screening Committee has commenced a consultation on screening for genetic haemochromatosis in adults.
What's it like becoming a GH blood donor?

Our Social Media Community and Volunteer Manager, Elizabeth reflects on her experiences of the new blood donation scheme and shares some details from behind-the-scenes.
2020 Conference Postponement and AGM Update

Haemochromatosis UK have taken the very difficult decision to postpone this year’s conference which was to be held in Manchester on Saturday the 4th of April due to the Covid-19 outbreak.
Frequently Asked Questions About Genetic Haemochromatosis

We have collated many of the frequently asked questions about genetic haemochromatosis here, for ease of reference.
Half Marathon Completed in Honour of Dad!

Michael Baker has completed his half marathon around Loughborough on Sunday. His appeal in memory of his Dad has raised over £1800 so far.