This special day aims to draw attention to rare diseases and the millions of people who are affected by them, highlighting the need for more research and funding to help people affected and their families.

Although genetic haemochromatosis is not rare, it is rarely diagnosed.

Join with us as we celebrate the 11th Rare Disease Day, in conjunction with Royal Holloway College, University of London. We hope to inspire students in school years 10, 11 and 12 particularly to consider studying for a career in medicine, biological sciences and genetics.

As part of the event we are very much looking forward to the below lectures:

  • Introduction to Rare Disease Day, Prof Rafael J. Yáñez Muñoz (Prof of Advanced Therapy at Royal Holloway University of London, http://agctlab.org, @rjyanezmunoz)
  • Genomics, health innovation and rare disease, Baroness Nicola Blackwood of North Oxford (Chair of Genomics England, Member of the House of Lords Science & Technology Select Committee, https://www.nicolablackwood.com/, @nicolablackwood)
  • How to train your virus, Prof Alan L. Parker (Prof of Translational Virotherapies at Cardiff University, https://www.cardiff.ac.uk/people/view/126626-parker-alan, @alanlparker)

We hope you will be able to join us as we celebrate the 11th annual Rare Disease Day!

The day's itinerary and further details for the waitlist are available here. Everyone welcome, free to attend.