European Iron Club 2021

This event has been re-scheduled from 2021 due to the CV19 pandemic.

Haemochromatosis UK will be opening this conference with an address on iron overload form the patients' perspective, before an august audience of European academics and clinicians, specialising in iron disorders.

Latest

#TeamIronOverload at the Best Practice Show

#TeamIronOverload attend the tenth annual Best Practice show in Birmingham to share knowledge and raise awareness in the medical community.
40% rise in membership

Look out for the members’ survey before Christmas help us shape our services.
British Society for Rheumatology Annual Conference 2022

The UK’s leading rheumatology event will be back in Glasgow April 2022 year for a three-day hybrid conference of cutting-edge research, best in the field speakers, posters, symposia, and much more.
Genetic Testing for Haemochromatosis in Ireland

Our genetic testing service for haemochromatosis, at a glance. Order a home-testing kit by post, get the results within 4 weeks.

HUK Expert Patient visits Surgery

HUK Expert Patient Phil Coathup visits Bewdley Medical Practice to raise awareness of Haemochromatosis.
RCN Congress 2022

At this year's Royal College of Nursing Congress, we are delighted to launch our Venesection Best Practice Guidance (endorsed by RCN).

CV19 Vaccine & Haemochromatosis

Advice and information on the new Covid-19 vaccines for people affected by genetic haemochromatosis. Updated 14th June 2021.
What is genetic haemochromatosis?

Genetic haemochromatosis (GH) is a genetic disorder causing the body to absorb an excessive amount of iron from the diet.
Genetic Testing for Haemochromatosis

Our genetic testing service for haemochromatosis, at a glance. Order a home-testing kit by post, get the results within 2 weeks.
Employers' guide to haemochromatosis

People with genetic haemochromatosis want to play an active role in society. These guidelines are intended to help employers understand how they can help people with genetic haemochromatosis in the workplace.
Coronavirus Update

Our helpline has received an increased number of queries about coronavirus. We've collated the current advice here. Updated 28th July 2021.
Treatment & care
Clinical Guidelines for Genetic Haemochromatosis

Our charity endorses the national clinical guidelines published by the British Society for Haematology in April 2018, for the treatment of people with genetic haemochromatosis. We strongly encourage patients to ensure that their consultants and venesection teams work to the BSH April 2018 guidelines.
Join us

Together, we are stronger. Join today as a member and receive the many benefits of membership of the UK's only charity for people affected by genetic haemochromatosis.
Genetics of haemochromatosis

Genetic haemochromatosis is an autosomal recessive condition, meaning that it is inherited. Whether someone inherits the condition, depends upon their parents' genetics.
Living well with GH

Changes to your diet cannot prevent iron overload. Check out our guide to healthy eating.