European Iron Club 2021

Haemochromatosis UK will be opening this conference with an address on iron overload form the patients' perspective, before an august audience of European academics and clinicians, specialising in iron disorders.

Latest

Going to Hell & Beyond for Haemochromatosis UK

In July 2020, Mike Fletcher (61) is riding his motorbike “To Hell and Beyond” to raise awareness and money for Haemochromatosis UK.
Big Give Christmas Challenge

This year, we're taking part in the Big Give Christmas Challenge, the UK’s biggest online match funding campaign. We’re hoping to raise vital funds for our 2021 awareness-raising campaign.
Virgin London Marathon - 2020

We have places at the Virgin London Marathon 2020. We’re delighted that Mark Handley will be running the Virgin Money London Marathon, in aid of Haemochromatosis UK. Support our runners here!
Awareness Raising at Balmoral Show

We're raising awareness of GH in the farming community in Northern Ireland.

HUK Expert Patient visits Surgery

HUK Expert Patient Phil Coathup visits Bewdley Medical Practice to raise awareness of Haemochromatosis.
Best practice nursing care for GH

A day-long training workshop for nurses and other healthcare practitioners caring for people with genetic haemochromatosis.
SfE BES 2020

Haemochromatosis UK will be exhibiting at the UK's foremost endocrine conference. Come and exchange knowledge, share experiences and strengthen collaborations with us across our global community!
Royal College of GPs Annual Conference

This is the must-attend event of the year for GPs and practice teams, with more than 60 hours of learning tackling the latest clinical and policy developments across the UK and bringing together an impressive range of national and international speakers.
Best Practice Conference

Best Practice is the UK’s national event for general practice. It uniquely brings together over 6,000 senior decision-makers and key influencers working within a practice or group of practices.
Endocrine Nurse Update

This event provides opportunities to share the latest advances in endocrine nursing expertise, discover the most recent developments and meet colleagues from around the UK.

Coronavirus Update

Our helpline has received an increased number of queries about coronavirus. We've collated the current advice here.
Ask the doctor

On Thursday 26th March 2020, we put our members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel.
Ask the doctor (part 2)

On Thursday 2nd April 2020, we put further members' questions about genetic haemochromatosis and coronavirus to Dr Susan Hancock FRCGP, a member of our Clinical Advisory Panel.
Frequently Asked Questions About Genetic Haemochromatosis

We have collated many of the frequently asked questions about genetic haemochromatosis here, for ease of reference.
2020 Conference Postponement and AGM Update

Haemochromatosis UK have taken the very difficult decision to postpone this year’s conference which was to be held in Manchester on Saturday the 4th of April due to the Covid-19 outbreak.
Accessibility
Clinical Guidelines for Genetic Haemochromatosis

Our charity endorses the national clinical guidelines published by the British Society for Haematology in April 2018, for the treatment of people with genetic haemochromatosis. We strongly encourage patients to ensure that their consultants and venesection teams work to the BSH April 2018 guidelines.
What is genetic haemochromatosis?

Genetic haemochromatosis (GH) is a genetic disorder causing the body to absorb an excessive amount of iron from the diet.
New Genetic Haemochromatosis Resources

We're pleased to announce the publication of three new resources, to help people affected by genetic haemochromatosis.
Venesections cancelled or delayed?

Our charity has negotiated special arrangements for people with genetic haemochromatosis to donate blood during the Covid-19 outbreak.