An Iron Overload Disorder - useful links
| BBC Health | www.bbc.co.uk/health/conditions/haemochromatosis1.shtml |
| Contact A Family | www.cafamily.org.uk |
| Netdoctor | www.netdoctor.co.uk/diseases/facts/haemochromatosis.htm |
| Wikipedia | en.wikipedia.org/wiki/Haemochromatosis |
| NHS Choices site | www.nhs.uk/Conditions/Haemochromatosis/ |
British Society for Haematology Haemochromatosis diagnosis and Treatment Guidelines:
http://www.bcshguidelines.com/pdf/chpt9B.pdf
UK Genetic Testing Network: A searchable online database of laboratories and the tests that they
provide, and further information on genetic testing.
www.ukgtn.org
UK Support Organisations
| Arthritis Care | www.arthritiscare.org.uk |
| Arthritis Research Campaign | www.arc.org.uk |
| British Liver Trust | www.britishlivertrust.org.uk |
| The Cardiomyopathy Association | www.cardiomyopathy.org |
| Diabetes UK | www.diabetes.org.uk |
| Genetic Interest Group | www.gig.org.uk |
| Mind (National Association for Mental Health) | www.mind.org.uk |
| Self Help UK | www.self-help.org.uk |
| Sexual Dysfuction Association | www.sda.uk.net |
| North West Haemochromatosis Support Group | www.haemochromatosis-nw.org.uk/ |
| LiverNorth Support Group | www.livernorth.org.uk |
| EQUIP NHS directory of over 4200 support groups and services - national and local to the West Midlands. | www.equip.nhs.uk |
International Organisations
Hemochromatosis Society Australia Inc |
www.haemochromatosis.org.au |
Canadian Hemochromatosis Society |
www.toomuchiron.ca |
Association Heamochromatose France |
www.hemochromatose.fr |
Hemochromatose Vereniging Nederland (Holland) |
www.hemochromatose.nl |
Irish Haemochromatosis Association |
www.haemochromatosis-ir.com |
New Zealand Haemochromatosis Support & Awareness Group |
www.ironz.org.nz |
Haemochromatosis Society of South Africa |
www.haemochromatosisza.org |
American Hemochromatosis Society |
www.americanhs.org |
Iron Overload Diseases Association (USA) |
www.ironoverload.org |
Iron Disorders Institute (USA) |
www.irondisorders.org |
European Federation of Associations of Patients with Haemochromatosis |
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Other links
| Citizen's Advice Guide to NHS Patient's rights | www.adviceguide.org.uk/index/family_parent/health/nhs_patients_rights.htm |