Further information on Haemochromatosis

Links

If you are unable to find the information you are looking for please contact the Society.

Links

BBC Health	www.bbc.co.uk/health/conditions/haemochromatosis1.shtml
Contact A Family	www.cafamily.org.uk
Netdoctor	www.netdoctor.co.uk/diseases/facts/haemochromatosis.htm
Wikipedia	en.wikipedia.org/wiki/Haemochromatosis
NHS Choices site	www.nhs.uk/Conditions/Haemochromatosis/
Northern Genetics Service Haemochromatosis Pages	www.newcastle-hospitals.org.uk/services/ng_npcg_common_hh.aspx
Newcastle Hosptials Jargon Buster	www.newcastle-hospitals.org.uk/jargon-buster.aspx

European Association for the Study of the Liver (EASL) Haemochromatosis Clinical Practice Guidelines [pdf: 8.73M] http://goo.gl/AxY0X

British Society for Haematology Haemochromatosis diagnosis and Treatment Guidelines [pdf: 360k]
www.bcshguidelines.com/documents/haemochromotosis_2000.pdf

Newcastle Hospitals Clinical Guidelines goo.gl/e6SC8

UK Genetic Testing Network: A searchable online database of laboratories and the tests that they provide, and further information on genetic testing.
www.ukgtn.org

UK Support Organisations

Arthritis Care	www.arthritiscare.org.uk
Arthritis Research Campaign	www.arthritisresearchuk.org
British Liver Trust	www.britishlivertrust.org.uk
The Cardiomyopathy Association	www.cardiomyopathy.org
Diabetes UK	www.diabetes.org.uk
Genetic Alliance	www.geneticalliance.org.uk
Mind (National Association for Mental Health)	www.mind.org.uk
National Osteoporosis Society	www.nos.org.uk
Self Help UK	www.self-help.org.uk
Sexual Dysfuction Association	www.sda.uk.net

North West Haemochromatosis Support Group	www.haemochromatosis-nw.org.uk
West Midlands Haemochromatosis Support	www.haemochromatosiswm.org.uk
LiverNorth Support Group	www.livernorth.org.uk

EQUIP NHS directory of over 4200 support groups and services - national and local to the West Midlands.	www.equip.nhs.uk
Carers Direct: information, advice and support for carers	www.nhs.uk/Carersdirect
Expert Patients Programme (EPP) organise free courses to help people manage their long term conditions	www.expertpatients.co.uk

International Organisations

Hemochromatosis Society Australia Inc	www.haemochromatosis.org.au
Canadian Hemochromatosis Society	www.toomuchiron.ca
Association Heamochromatose France	www.hemochromatose.fr
Hemochromatose Vereniging Nederland (Holland)	www.hemochromatose.nl
Irish Haemochromatosis Association	www.haemochromatosis-ir.com
New Zealand Haemochromatosis Support & Awareness Group	www.ironz.org.nz
Haemochromatosis Society of South Africa	www.haemochromatosisza.org
Iron Disorders Institute (USA)	www.irondisorders.org

Links

Links

UK Support Organisations

International Organisations

Other links