Content Reviewed April 2013 | Author: The Haemochromatosis Society © 2013
About The Haemochromatosis Society
The Haemochromatosis Society was established in 1990 in order to help, support and provide information for those affected by Haemochromatosis (Iron Overload Disorder). Membership has grown over the years, but to date the Society has not employed paid staff. The volunteer board, advisors and adminstration staff work to further Society's aims, which are;
- To SUPPORT people with GH by providing help with their problems and ensuring that their relatives are tested in due time. The quarterly newsletter provides news and views from members in the UK and from around the world. Opportunities to meet other members living nearby are arranged if they wish.
- To promote AWARENESS among the health professions, patients and their families, the general public and policy makers so that the condition may be diagnosed and treated in time. There is also a need to overcome the misconceptions that GH is rare, that only middle-aged men are at risk, and women are seldom affected until their menopause.
- To encourage and support RESEARCH, and provide resource material for the allied medical professions. The Society keeps up to date on the latest studies.
Join the Society
Members of the Society receive record cards to keep track of their treatment, quarterly newsletters, an informative Haemochromatosis Handbook and opportunities to meet and network with other members. If you would like to join the Society please click here to print the membership form to return to us.
The Society's work is funded by the subscription fees of its members, through the help of fundraisers, donors, and legacy gifts. If you would be interested in getting involved in fundraising please contact us.
On the internet you can help raise funds for us through sponsorship, donating or by searching online with everyclick.
Donations and sponsorship pledges can be made by texting GHSO12 £x to 70070 where x is the sum in pounds to donate.
To donate proceeds from eBay sales to us you can register to do so here: goo.gl/5Kwc8
All website content is copyright The Haemochromatosis Society unless otherwise indicated. Any content republished or copied to others, the source of the material must be identified and the copyright status acknowledged.
If you require any materials for fundraising or awareness please contact the Society. Use of The Society Logo in not permitted without approval – please contact us if you have any questions.
Professor T. M. Cox, University of Cambridge School of Clinical Medicine
Dr. J. S. Dooley, Centre for Hepatology, The Royal Free Hospital, London
Professor M. J. Pippard, Emeritus Professor, Dundee Medical School
Professor R. Williams CBE
Professor P. Wordsworth, Nuffield Orthopaedic Centre, Oxford
Dr. K. Robson, Weatherall Institute of Molecular Medicine, Oxford
Professor R Evans, Brunel University, London
The Society is a member of the following organisations, the International Association of Haemochromatosis Societies, the Genetic Interest Group and Contact a Family, and is affiliated to the British Liver Trust.
The Haemochromatosis Society is a charity registered in England and Wales (No. 1001307) and in Scotland (No. SC041701), and a company Limited by Guarantee (No. 2541361).